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DENIED
Published by Kerry | Filed under Uncategorized
I’ve been a little lax on the blog posting, and there’s good reason for that. I’m pissed off (Dad, you’re lucky I left out the f-bomb in this sentence, I love you!). Our request for Synagis was denied. What does this mean? See this post for a little (long) backstory on what Synagis is, and why it’s important to babies born prematurely. I knew the request was likely to be denied, and that doesn’t mean that we’re just giving up (I’m in the process of drafting a letter of appeal to our insurance company), but I’m just so damn pissed off.
The guilt (and anxiety and jealousy that we can’t just live a “normal” life with our family) is making its way back, and that pisses me off, too.
This news, coupled with the fact that certain people just do.not.understand the importance of keeping Max and Wes as healthy as humanly possible over the next six months, is making me crazy crazier than normal. So you know what? If I tell you to wash your hands, or ask you if you are remembering to sanitize when you’re around the boys, following a sneeze or a cough, after you touch a doorknob, whatever – just freaking do it. Just do it. It’s not that hard, it doesn’t take much time, and most importantly, it’s for the health and safety of Max and Wes!!!
Most parents who haven’t walked in our shoes don’t get it, and we don’t expect them to. All we can ask is that our friends and family members respect our wishes and follow our rules to keep our little guys safe and healthy. We were already cheated out of almost two months of bonding time with Max and Wes (which was especially hard after the struggle we went through to have them). I don’t know that we are strong enough to go through a potential hospitalization and all of the worry and sadness that would go along with it just because someone “doesn’t get it”.
Kerry
8 Responses to “DENIED”
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October 28th, 2009 at 7:50 pm
Oh sweetie, I totally get it. We are officially on lock down and I am being extra careful. Hang in there and if you want to come hang out with a family that lives on hand sanitizer, we are here!!
XO
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October 28th, 2009 at 8:30 pm
I can’t believe that people are STILL giving you crap about this. Even if Max and Wes weren’t “high risk” – YOU are their parents…therefore if you ask people to strip down naked and put on a hazmat suit before they come in that is your right and they need to respect it. Grrr…that makes me SO MAD.
Good luck on your appeal Kerry…I really REALLY hope you get it!
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October 29th, 2009 at 8:13 am
I am just shocked that this isn’t a “no-brainer” for the people who come to visit you. Seriously, are they offended that you ask them to use hand sanitizer? You just gotta wonder sometimes…
And ditto on the good luck for your appeal. Wish there was something we could do…
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October 29th, 2009 at 9:34 am
OMG!!!! i fell like we are living the same thing. i just got in a HUGE battle with someone i went to HS with on facebook about how i was a paranoid person and i needed to get a life! i told her to go to hell (sorry lol) i was fuming she has NO idea what its like to have babies so early! uhhhhh this is SO annoying i feel for you!
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October 29th, 2009 at 11:38 am
Meghan, if one.more.person tells me that we’re being “paranoid” or “anal” or anything of the like, I’m going to go postal. For reals. I wouldn’t wish a premature baby on ANYONE, but if I could let a few choice people live in our shoes for a day, or two, that would be great.
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October 29th, 2009 at 7:28 pm
I got some great advise from Jason’s step mom when she visited. She told me that my concern is for Cooper and my job is to keep him safe. That’s what we do as moms and that is what you do everyday for Max and Wes. So tell them to wash their hands and tell them to leave if you have to. They will get over it. Good luck on the appeal. Insurance sux.
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October 29th, 2009 at 7:30 pm
I’m so sorry that you were denied and that people are not being cooperative or understanding.
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October 31st, 2009 at 1:41 pm
dude, i totally get it. i don’t have a kid with a compromised immune system and i am still “anal” and “paranoid” about her health. i promise i will wear a mask when i come smother your children with kisses.
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